More about "The Myeloma Survival Guide"

After two years of research, writing and testing – and after content contributions from more than one hundred voices – the TBA Foundation has produced, The Myeloma Survival Guide, a book of instruction and coping tools for newly diagnosed multiple myeloma patients and their caregivers. It is the necessary introduction for people with no medical background, who have just discovered that they face a grave situation and will propel them into the healing game. The book, in production with Demos Health, was released in June 2014.

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The manuscript has been enthusiastically reviewed by patients and some of the world’s leading myeloma specialists.

Read what they're saying...

Dr. Jim Tamkin has turned his own illness into benefit for patients with myeloma worldwide. Together with Dave Visel, they have developed a literal GPS system, an invaluable guide to patients with newly diagnosed multiple myeloma. Not only have they provided clear information on the disease and its treatment, but most importantly also convey critical guidance on how to deal with the very personal life- impacting effects of this disease for patients and family members alike. In this era of great excitement in myeloma where novel therapies are changing the treatment paradigm and improving patient outcome, this book assures awareness and access to patients and caregivers of these advances, so that patients can enjoy longer and higher quality lives with their loved ones. There simply is no greater gift than this.

Kenneth C. Anderson, MD
Kraft Family Professor of Medicine, Harvard Medical School
Chief, Division of Hematologic Neoplasia
Director, Jerome Lipper Multiple Myeloma Center and LeBow Institute for Myeloma
Therapeutics Dana-Farber Cancer Institute
Boston, Massachusetts

The manuscript was delightful, with facts, factoids, tidbits, and anecdotal descriptions that would help anyone starting on their myeloma adventure. We have come a long way since the advent of transplants with the discovery of new novel agents and the combination therapies. There is much to learn and much to do. I was pleased that Dr. Tamkin takes into account the vast differences in approach to the disease, its treatment and whether or not cure is real. I would definitely recommend the book to my patients and their caregivers.

Bart Barlogie, MD, PhD
Director, Myeloma Institute for Research and Therapy
Winthrop Rockefeller Cancer Institute
University of Arkansas

It's tremendous for new patients to have this book. A myeloma diagnosis is overwhelming. Even as a physician, I did almost nothing but read for a month after my myeloma was confirmed. One of this book's greatest values is that it covers everything in one place.

Burton Dickey, MD
Myeloma patient
Professor and Chair, Department of Pulmonary Medicine
MD Anderson Cancer Center
Houston, TX

This handbook is the ultimate guide for all patients and caregivers as they navigate through the rapidly changing landscape of the myeloma diagnosis and treatment process. The authors have poignantly written The Myeloma Survival Guide, from the unique perspectives of the patient and caregiver. The intimate knowledge of living with cancer allowed the authors to highlight common health and psychosocial concerns as patients are living longer than ever.

Beth Faiman, PhDc, MSN, APN-BC
Mutliple Myeloma Nurse Practitioner, Taussig Cancer Institute
Cleveland Clinic
Cleveland, OH

This is a wonderful primer for myeloma patients and their caregivers. It provides up to date knowledge while at the same time providing practical pointers for patients and caregivers to deal with this horrible disease. Since knowledge is power, this book will provide essential tools to allow patients and caregivers weather the “myeloma storm” more prepared. I wholeheartedly recommend it.

Sergio A. Giralt, MD
Chief, Adult Bone Marrow Transplant Service
Memorial Sloan-Kettering Cancer Center
New York City

As a patient, I understand how difficult it is for patients and their families to manage the uncertainties of a multiple myeloma diagnosis. David Visel and Dr. Jim Tamkin have collaborated to develop a detailed resource for approaching this situation, which will undoubtedly help newly diagnosed myeloma patients and their caregivers attain the information that they need to empower themselves throughout their journey with myeloma

Kathy Giusti
Founder and CEO
Multiple Myeloma Research Foundation

The book is very good! It is direct and comprehensive and features just about anything and everything new myeloma patients, caregivers and family members need to know.

Pat Killingsworth
Multiple Myeloma Patient
Medical Journalist and Freelance Medical Writer

I will hand this book to new myeloma patients, knowing that it will give them tools and a confidence that they would not have gotten without it. The teaching is clear, complete, accurate, easy to follow, memorable, and occasionally very funny. It produces better prepared patients for their oncologists to treat. When I learned that I had myeloma, in 2007, I looked for this book. It was not there. Even though I had access to the medical faculty of a great university, my pathway to survival followed a much tougher road than you will be shown here. The authors and I are now at work on a fast-track guide for new patients. This book will be its text. If you are a myeloma patient, or a caregiver, the key to the future is in your hands. Don’t put it down.

John W. Killip, DDS
Myeloma Patient
Clinical Professor Emeritus
University of Missouri School of Dentistry
Kansas City, MO

We have needed this authoritative, comprehensive, encouraging reinforcement for myeloma patients for at least ten years. A copy should be placed in the hands of every new myeloma patient at the time of diagnosis.

Robert A. Kyle, MD
Professor of Medicine, Laboratory Medicine and Pathology
Mayo Clinic Cancer Center
Rochester, Minnesota

In a word, it's FABULOUS! I can find nothing lacking in style or substance in this treatise on myeloma. As you know, I have been studying the literature on myeloma since my diagnosis in 2006. I have interviewed eight different doctors (five oncologists) relative to my treatment. Almost all of what I've discovered is in the first 90 pages and I've still got some reading to do! I've received written "what to expect" documents from both the City of Hope and the Veteran's Administration --- neither of which is this complete, enlightening or well written. The authors have produced a well documented research paper that reads like a novel! What a wonderful tool this will be in the hands of oncologists treating myeloma and their patients, caregivers and other interested parties! I hope that the authors will rush it into print so I can "spread the word!"

Duke Rohlffs
Myeloma Patient
Mesquite, NV