More about "The Myeloma Survival Guide"

This is your guide to survival on the best possible terms. Latest, best treatment. Lowest costs.

Several hundred experts and patients have pooled their experiences. You will know what to do. What not to do. And why.

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The manuscript has been enthusiastically reviewed by patients and some of the world’s leading myeloma specialists

Read what they're saying...


    Kenneth C. Anderson, MD
    Kraft Family Professor of Medicine, Harvard Medical School; Chief, Division of Hematologic Neoplasia; Director, Jerome Lipper Multiple Myeloma Center and LeBow Institute for Myeloma Therapeutics; Dana-Farber Cancer Institute

    Dr. Jim Tamkin has turned his own illness into benefit for patients with myeloma worldwide. Together with Dave Visel, they have developed a literal GPS system, an invaluable guide to patients with newly diagnosed multiple myeloma. Not only have they provided clear information on the disease and its treatment, but most importantly also convey critical guidance on how to deal with the very personal life- impacting effects of this disease for patients and family members alike. In this era of great excitement in myeloma where novel therapies are changing the treatment paradigm and improving patient outcome, this book assures awareness and access to patients and caregivers of these advances, so that patients can enjoy longer and higher quality lives with their loved ones. There simply is no greater gift than this.

    Bart Barlogie, MD, PhD
    Director, Myeloma Institute for Research and Therapy,
    Winthrop Rockefeller Cancer Institute, University of Arkansas

    The manuscript was delightful, with facts, factoids, tidbits, and anecdotal descriptions that would help anyone starting on their myeloma adventure. We have come a long way since the advent of transplants with the discovery of new novel agents and the combination therapies. There is much to learn and much to do. I was pleased that Dr. Tamkin takes into account the vast differences in approach to the disease, its treatment and whether or not cure is real. I would definitely recommend the book to my patients and their caregivers.

    Burton Dickey, MD
    Myeloma patient; Professor and Chair
    Department of Pulmonary Medicine, MD Anderson Cancer Center

    It's tremendous for new patients to have this book. A myeloma diagnosis is overwhelming. Even as a physician, I did almost nothing but read for a month after my myeloma was confirmed. One of this book's greatest values is that it covers everything in one place.

    Beth Faiman, PhDc, MSN, APN-BC
    Mutliple Myeloma Nurse Practitioner
    Taussig Cancer Institute, Cleveland Clinic

    This handbook is the ultimate guide for all patients and caregivers as they navigate through the rapidly changing landscape of the myeloma diagnosis and treatment process. The authors have poignantly written The Myeloma Survival Guide, from the unique perspectives of the patient and caregiver. The intimate knowledge of living with cancer allowed the authors to highlight common health and psychosocial concerns as patients are living longer than ever.

    Sergio A. Giralt, MD
    Chief, Adult Bone Marrow Transplant Service
    Memorial Sloan-Kettering Cancer Center, New York City, NY

    This is a wonderful primer for myeloma patients and their caregivers. It provides up to date knowledge while at the same time providing practical pointers for patients and caregivers to deal with this horrible disease. Since knowledge is power, this book will provide essential tools to allow patients and caregivers weather the “myeloma storm” more prepared. I wholeheartedly recommend it.

    Kathy Giusti
    Founder and CEO, Multiple Myeloma Research Foundation

    As a patient, I understand how difficult it is for patients and their families to manage the uncertainties of a multiple myeloma diagnosis. David Visel and Dr. Jim Tamkin have collaborated to develop a detailed resource for approaching this situation, which will undoubtedly help newly diagnosed myeloma patients and their caregivers attain the information that they need to empower themselves throughout their journey with myeloma

    Pat Killingsworth
    Multiple Myeloma Patient, Medical Journalist and Freelance Medical Writer

    The book is very good! It is direct and comprehensive and features just about anything and everything new myeloma patients, caregivers and family members need to know.

    John W. Killip, DDS
    Myeloma Patient, Clinical Professor Emeritus, University of Missouri School of Dentistry

    I will hand this book to new myeloma patients, knowing that it will give them tools and a confidence that they would not have gotten without it. The teaching is clear, complete, accurate, easy to follow, memorable, and occasionally very funny. It produces better prepared patients for their oncologists to treat. When I learned that I had myeloma, in 2007, I looked for this book. It was not there. Even though I had access to the medical faculty of a great university, my pathway to survival followed a much tougher road than you will be shown here. The authors and I are now at work on a fast-track guide for new patients. This book will be its text. If you are a myeloma patient, or a caregiver, the key to the future is in your hands. Don’t put it down.


    Robert A. Kyle, MD
    Professor of Medicine, Laboratory Medicine and Pathology
    Mayo Clinic Cancer Center, Rochester, Minnesota

    We have needed this authoritative, comprehensive, encouraging reinforcement for myeloma patients for at least ten years. A copy should be placed in the hands of every new myeloma patient at the time of diagnosis

    Duke Rohlffs
    Myeloma Patient, Mesquite, NV

    In a word, it's FABULOUS! I can find nothing lacking in style or substance in this treatise on myeloma. As you know, I have been studying the literature on myeloma since my diagnosis in 2006. I have interviewed eight different doctors (five oncologists) relative to my treatment. Almost all of what I've discovered is in the first 90 pages and I've still got some reading to do! I've received written "what to expect" documents from both the City of Hope and the Veteran's Administration --- neither of which is this complete, enlightening or well written. The authors have produced a well documented research paper that reads like a novel! What a wonderful tool this will be in the hands of oncologists treating myeloma and their patients, caregivers and other interested parties! I hope that the authors will rush it into print so I can "spread the word!"